Embrace the suck!

We are still trying to schedule the surgery to resect the tumor before it grows into Max’s brain cavity.  Aligning a head/neck cancer surgeon with a pediatric neurosurgeon appears to be impossible, I am frustrated beyond belief.  We are hoping for a cancellation in the next few weeks so that they can squeeze Max in. Tic Toc. We are also contacting other facilities.  I keep wondering if this is a sign, maybe the surgery isnt meant to be.   I really don’t want to go through with it, but I do believe that it is necessary.   

 “Embrace the suck” was the motto given by a US soldier on how to deal with the harsh situations in the Afghan war.  Our neighbor/author Eric Blhem was inspired when interviewing a soldier about his focus on the positive, no matter how small, even a dry spot under the brim of his hat in a torrential rain storm, just to get him through the night.  When we told Max that the cancer was back, he was pretty upset about all the needles and shots ahead, but then decided to focus on something that makes him happy, he gets to be bald again.  Yes, happy to be bald.  Max’s favorite super hero is the Avatar, the Last Air Bender.  A tv animated series about a child monk that is bald, he has super powers and has to save the world from the evil.  Max will get to be just like the Avatar now.  So, like Max, we continue to embrace the suck, to focus on the good things in our lives. 

 Heres a few pics of our fun trip to Hawaii.